Out of 3 daughters Mimi is our middle child, older sister Iza by 3 minutes and a younger sister Magi by 3 years. Mimi was diagnosed with Acute Lymphoblastic Leukemia (ALL) on August 12, 2009. After 2 years, 2 months and 26 days on November 6th, 2011 she took her last chemo pill and is considered OFF Treatment! This is our story of our journey through childhood cancer.

Tuesday, March 16, 2010

Maintenance Here We Come!

Finally! Counts are up Up UP!
WBC - 3.98
Hgb - 12.0
Platelets - 205
Neutrophil - 1540!!!

Today's Chemo:
Vincristine (port)
Methotrexate (intrathecal Methotrexate, Spinal Tap)

Today's clinic visit was photographed. Mimi saw pictures on a little girls blog of her procedure day so she asked if I can do the same for her. So below are some pics of her clinic visit during a procedure day.

Around 9am Mimi gets accessed. Today's milestone, she sat by herself! Since she had her port she sat in my lap every time she got accessed but today she asked to sit on her own so I can take pics. She does not mind any part of being accessed except the smell of the alcohol wipe. She is also a big help with putting the tape on. Since she gets a reaction to Tegaderm we use this "fancy" tape (IV3000)

"My tubbies! Mr. Purple and Mr. Yellow" Mimi gets to fill these with her blood and the go down the hall to the lab where she got to even drop them off before.

10:45 am - While we wait a couple of minutes for the counts to be back Mimi hung out in the playroom coloring and getting a foot rub, somehow I forgot to get a pic of that. I might have been distracted by my back rub. 15 minutes later counts are back and we are good to go downstairs for the procedure! The Child Life Specialist comes with us with a fun project to do while we wait to go into the procedure room.

And here is one of Mimi's pictures, one of many she made today.

Around 11am - In the procedure room. The man in blue is one of the two anesthesiologist that was there today. Mimi gets a little anxious when she knows the "sleepy medicine" is coming but everyone there is pretty awesome doing their job and she is sleeping within seconds.

Here she is sleeping. The oxygen does not go over her face until she is asleep. So she was confused what it was when she saw this picture.

Around 11:45am Back in the recovery room. All went well. Mimi was a sleeper today she slept well over an hour after the procedure was over. She loves those warm blankets!

1pm - Our three minute drive home and yes the warm blanket came home with us and no it does not stay warm.

1:30pm - Having lunch, those long awaited red peppers with dip aka. Ranch Dressing. It was so nice out she sat outside in the sun with her sisters.


  1. She is insanely brave, Kat, and I am THRILLED with the news about the counts!!! YAY FOR MAINTENANCE!!!!!

    Liz and Nick

  2. Hooray for Maintainance, Mimi makes it look good! She's strong, and I know where she gets it from.

  3. Congrats! So excited for you all!!

    Kristin, Colton & Macie Jane

  4. That is great news! Mimi you are a superstar!!!

    Yay for the last phase and for counts going up :)

    Michelle, Noah and Paige

  5. I am so thrilled for you all!!

    Amy, Morgan and Keira

  6. She looks so amazingly peaceful sleeping after her medicine.

  7. Excellent! Gotta love the post-procedure naps.

  8. YAY!!! That is great news. And Mimi you look so adorable in the tshirt I got you!!!!!!!

  9. this is THE best news! so glad, so glad!

    love, Linda & Gene

  10. Oh my goodness - someday she will look back on these pictures and be so proud of how much she overcame and how strong and brave she is. Keep fighting you amazing girl