Live Happy and Be Monkey!

This weekend felt like a vacation! Even though I worked a bit everyday we had a blast it was a perfect do nothing planned but have loads of fun weekend. Part of it was maybe that on Friday when Mimi did not feel well all day, I though we might not be doing anything at all, but when she woke up Saturday morning re-energized and ready to have fun that is exactly what we did and then some! You just never know what tomorrow will bring so live happy and be monkey!

loads of giggles SUN hugs & kisses movies pool sleeping in! puzzles pretzel m&ms auntie tracy staying up pedal/paddle boats burritos silly bandz

Goober Monkeys.

That's all. Just sharing some CHEEZE.

Weekend Fun!

We haven't been out much due to low counts but Sunday we packed a mask and lots of antibacterial wipes and went to see a play at the Eric Carle Museum. Goldilocks and the Three Bears by the Castle Hill Theatre Company what a great show, a fairy-tale favorite with twist! The cast stayed after the performance to talk with the kids and we even got a back stage tour, all the girls truly enjoyed it! The day was nicely finished off with fast melting ice cream, giggles and lots of rolling down the grassy hills at Atkins Farm. Thank You to MacaroniKid where we won tickets to the play!

Inpatient Day 3

We are still here... Mimi's counts are a bit better she looks great. She is getting silly which means she is ready for home. She spent most of the morning with Toto and Eryn while I went home to take care of Iza who was resting from a 12 hour stomach bug and MagiBoo who needed mama snuggles.

We will probably go home tomorrow as long as counts keep going up. Her platelets went from 22 yesterday to 26 today so no platelet transfusion needed today.

Okay I am off to find a flashlight for the fort on Mimi's bed.

Long Day at the Clinic.

Not Bad. Just LONG.Today was Day 1 of 57 of Standard Delayed Intensification

First off I forgot to put on the Emla (numbing cream) I let Mimi sleep in so she would not have to be awake and hungry for too long. No worries that got taken care of when we got there. Next were counts, they were good. But since Mimi still has a cough and the Onc. thought he heard a "crackle" she was sent for a chest X-ray which came back quickly and negative Yey! So off to the procedure room we went (with a visitor - Kate :) Mimi perked up a bit for that) She was a bit nervous before the anaesthesia but went to sleep calmly. She got Inrathecal Methotrexate. I was nothing BUT calm, I hate sitting waiting in the waiting room, I watch the door and anxiously await the nurses to come get me when she is in the recovery room. She woke up pretty quickly today abut was very out of it for a while since she got Morphine today during her procedure, which is now making her funny, literally funny she is sitting next to me while I write this and is making up jokes that I need to type so Nana can read them :) After the Spinal, we went back upstairs to the clinic for the rest of the chemo (Doxorubicin). She is pretty tired now. We will just hang out watching movies tonight. Tonight we also start Dexamethasone (steroid) for 7 days.

A Joke from Mimi:
Knock Knock.
Who is there?
There is an orange on your head.
There is a plant growing on your head.
And that is it.

Thanks Meg and Eryn for a fun Sleep Over!!! G-Force! love, MIMI IZA


Today's Counts
WBC - 5.5
Hgb - 13.3
Platelets - 246
Neutrophil - 2300

Silly Saturday.

So Steroids are suppose to make kids moody. I am still scared of the "bad" moods, although so far Mimi keeps having giggle fits. Along with her partner in crime Iza they say one word and laugh about it for 20 minutes or more. If you are near by you can't help but laugh along with them.

Today's word of the day was skunk and monkey. I am hoping this continues...

Another mood change she has shown recently is ignoring people and pretending she is shy, this is a VERY odd thing for any of our girls since shy is something they never did. The shy thing only lasts for a bit and them she starts with the giggles. The same giggle she had when she was tiny.