Clinic Day.

Mimi had a quick clinic visit today just to check counts and adjust chemo dose. Her nightly 6-MP chemo is remaining at 75% and her weekly Methotrexate is at 75%

She is looking and feeling good.

WBC - 2.56
HGB - 10.3
PLT - 270
ANC - 1190

Clinic Day.

Just a quick finger prick blood draw today. To check Mimi's counts since she has restarted chemo, since counts came back okay her dose of her nightly chemo (Mercaptopurine) was increased to 100%. Her weekly Methotrexate chemo is still at 50% for now. She is feeling pretty good and bouncing back to herself, whatever this "thing" was it really tired her out.

Good counts + NO Fever = School!

ANC 1900

Clinic Day.

Also Day 16 of fevers. Crazy. Still no known source either. I haven't really updated since there has not been much change. I know everyone is trying to do everything to figure this Mimi mystery out and I am very thankful to have such a wonderful team of Doctors, Nurses and everyone else involved in her care.

I joked today and said "Maybe she is just teething!" That used to be my answer to everything from the time the girls were 3 months old until they were 2 years old. I have to joke otherwise I think I would likely just lose my mind.

Her counts are okay, Chemo has been restarted back after being on hold for the last two weeks. Which was also making me nervous. She received her monthly Vincristine through her port and will start on about 50% doses of chemo (Mercaptopurine and Methotrexate) We will see how she handles that. No steroids this month. She is feeling okay but her energy level and appetite is definitely lower. Although having two energetic sisters is like a little energy pill for her she keeps up with them for a bit but knows when to go and take a nap.

This afternoon she had an echo cardiogram done to see if anything might be found. She fell asleep during it so the technician was able to get some really good images. She falls asleep during every ultrasound I think it is the low light and the noise of the computer. We should get some results tomorrow. There are a couple of tests that were done for things like cat scratch disease, salmonella and a ton of others, some have come back and are negative others we are waiting on results. I have learned about a whole lot of viruses the past couple of days.

Counts 8/31/11

WBC 4.03

HGB 9.5

PLT 250

Neutrophil 2170

SUN is here! Clinic Day

It was so nice to be out in the hot sun today! I hope this weather is here to stay a while.

Mimi had a clinic visit today, Iza was very excited to accompany her sister. Everything checked out pretty good. I am pretty sure that she in fact is lactose intolerant, I am blaming it on chemo. Since she stopped having milk she has not once complained of feeling pukey or having any other GI issues. It is so nice to have a happy kiddo back!

Counts came back fine, neutrophil count was on the higher side so her MP6 (Mercaptopurine) nightly chemo pill dose was increased. It has been long since she has been on 100% of her chemo dose, I just hope her counts don't go crashing down. Think Positive!

Counts:
WBC - 5.5
Hgb - 11.9
Platelets - 218
Neutrophil - 3700

Clinic Day 3-16-11

Mimi was not feeling great in the morning so I had her stay home until it was time to go clinic. She has been nauseous and constipated for the last three days, Zofran and Maalox seemed to take care of those issues. I think it is a combination of the time change, rainy weather and half of their class being sick.

Today was Vincristine day so her port was accessed, blood drawn and she got checked out by the Onc. All looks good. Last week her blood was sent out to check if she has a 6mp (Mercaptopurine) sensitivity, she has been on about 47% dose for a while now and her counts took a while to come up. The results came back normal. So next step is to take away Bactrim (weekend antibiotic) and use a daily antibiotic.

Today's Counts:
WBC - 5.8
Hgb - 11.6
Platelets - 214
Neutrophil - 4200

Clinic Day.

It was a quiet day at the clinic, I think most of the world was shopping or sleeping in after big dinners the night before. Magi and Iza slept over my parents house so this morning after Daddy went to work Mimi and I slept in until 8:40, clinic was at 9. She was not happy about getting the sleepy medicine today so I figured the longer she sleeps the less we need to think about it. She woke up and asked for breakfast and quickly realized she can't have any. I quickly made her think of something else, I told her she can bring the camera to clinic and we can make a book about procedure day. She was very excited, I will be sure to post it when our book is done.

Counts were on the lower side, so 6MP (Mercaptopurine) dose is reduced to 50%, Bactrim (antibiotic) on hold and going back for counts on Wednesday. This past Tuesday during gym Mimi told me she was running around and her chest hurt, once she rested it was better. Since this is the second time this has happened on Wednesday she is scheduled for an echocardiogram and a EKG (electrocardiogram.)

Everything went well with the procedure (Intrathecal chemotherapy) the two anesthesiologists were really good with Mimi they took time to talk to her and showed her what all the machines in the procedure room do. Today she chose to watch as the white sleepy medicine (Propofol) was injected into the IV but got upset that it was gross. Sleepy head woke up when I told her it is time for lunch, her choice Subway!

Today's Counts:
WBC - 1.65
Hgb - 12.4
Platelets - 193
Neutrophil - 550

Not so Happy. Clinic Day.

Mimi woke up this morning very tired, sad, just "blah" it didn't really get any better while we were at the clinic she looked like she might be getting a fever. Her heart rate was fast, which usually indicates a fever coming. Counts came back and her ANC is pretty low. Nightly chemo pill (mercaptopurine) on hold until further notice. Five day steroid (dexamethasone) pulse is still happening starting today. She had blood cultures taken at the clinic just in case we end up admitted for fever. Since todays Spinal Tap is not count dependant she still got it, everything went fine.

We packed up the and came home for lunch. Mimi ate and drank a bit and has been on the couch watching the food network. I am crossing my fingers that ONE we all sleep a home tonight instead of the hospital and TWO when we go for counts on Friday they are well enough to start school on the 7th, they need to be over 500.

Mail came today! Mimi's backpack came in, Iza's came last week. Also some fun school accessories for all three girls from Auntie Sherri and Uncle Joe :) Thank you!

Counts:
WBC - 3.17
Hgb - 12.5
Platelets - 212
Neutrophil - 200

Clinic Day.

What a day.

First counts are not awful but not great either. I guess the good thing is they have gone up since last week just not by much. She took her Methotrexate tonight (it is taken once a week unless counts are under 500) and se will also take her nightly chemo pill and I am hoping that her counts will continue going up. I am trying to think positive for her, she is really looking forward to all the fun starting on Friday, we all are.

Today's Counts:
WBC - 2.07
Hgb - 11.3
Platelets - 175
Neutrophil - 620

Iza has been "off" for the last couple of days. Just extra whiny and throwing some tantrums that I was really thinking we were done listening to. She has also been sleep walking and all of this is just NOT sitting well with me. To top it off she was in tears tonight saying her head hurt alot, five minutes later she was throwing up for an hour. Dan gave her a shower and put her to bed at 5:30. I hope she is all better tomorrow morning.

And of course Magi had to join the show today... She fell asleep at 5 on the couch I transferred her to her bed and so far she is still there.

Tonight for the first night since Mimi started Maintenance I am going to bed at 8pm setting my alarm for 10 to give Mimi her pill. I have a feeling I might have some early risers in the morning.

Oh and one more thing the tooth fairy is coming tonight for Mimi!

Clinic Day. Sunny Day.

This morning was a count check, since last week ANC (neutrophils) were at 290 which put her daily chemo pill on hold. Today ANC was not great but high enough to continue her MP6 (Mercaptopurine) and weekly dose of Methotrexate.

We also went over to get an x-ray. Lately Mimi has been complaining of her heel hurting, it does not effect her "monkeyness", but she does complain and I have also noticed she walks and runs funny. I will call in the morning tomorrow to get the results from the x-rays.

On the way home she asked "So, how many neutrophils do I have today?" I told her and she replied "Oh 900 is more than 290! so that is good, so I have to take my pill at night right?" Mimi hears the nurses and doctors talk about numbers and it amazes me how she listens and remembers all the information.

After clinic today we went to a park and she ran around keeping up with her sisters and friends but was wiped out on the way home!

Today's Counts:
WBC - 2.2
Hgb - 12.5
Platelets - 150
Neutrophil - 900