Out of 3 daughters Mimi is our middle child, older sister Iza by 3 minutes and a younger sister Magi by 3 years. Mimi was diagnosed with Acute Lymphoblastic Leukemia (ALL) on August 12, 2009. After 2 years, 2 months and 26 days on November 6th, 2011 she took her last chemo pill and is considered OFF Treatment! This is our story of our journey through childhood cancer.

Monday, June 14, 2010

Pain.

Mimi has been having back and hip pain since Saturday, in her words "I can just sit in the stroller for the walk so we don't have to call the doctor." Sunday I know she was hurting because at night she was grinding her teeth and during the walk she sat in the stroller for the most part. But did not let any of the pain spoil her super awesome time! This morning she had tears in her eyes and asked if I could call the clinic. We got the okay for Tylenol and I also put warm towels on her back. The pain came back after lunchtime, after another call to the clinic we got some stronger pain meds but Mimi said she will wait until it hurts "a lot, a lot" to take them. She has a high tolerance for pain which I have yet to figure out if that is a good thing or not...

4 comments:

  1. Bummer!! Mollie gets pains like that sometimes and right when I get all worked up that it might be AVN or a relapse, it subsides. Hope your little monkey feels better!

    Sarah

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  2. Thank you Sarah, she seems better today.
    That is exactly what I worry about, AVN, or the worse. I have been charting her "pains" and they seem to be always at the end of steroid week.

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  3. Aww I hope that her pains start to go away soon and that it is just that easy! She's a strong little monkey, I wouldn't know if the high pain tolerance would be a good thing or bad, either. Get better Mimi!!

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  4. Hi there-I'm so sorry to hear about Mimi's pain! Just another day in cancer-land. Sigh. I'll tell you that we give Tylenol regularly--our doctor doesn't have a prohibition on it other than not overdosing in a 24 hr period. When J is on steroids/Vinc, her stomach and legs hurt. I understand the leg pain is really from the Vincristine, not the steroids, for the most part.

    My husband, who is an ER doc, believes pain is not good for healing as it takes physical and emotional resources to manage the pain, rather than the underlying cause. So we work to keep Jordan pain-free.

    Just a perspective I thought might be helpful... of course Mimi's care is up to you and your doctor!!

    Hugs and love,
    Deborah and J

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