Most counts are okay but her ANC (*Neutrophil) is 660, not great. Mimi did get her scheduled chemo same as last week and did okay with it. Cough is still lingering but not getting worse.
Today is also Day 1 of 7 of steroids.
In other news... Iza lost a tooth #2 RIGHT before she fell asleep tonight, she really wanted a visit from the tooth fairy tonight.
*Neutrophils fight against infection and represent a subset of the white blood count. Neutropenia by definition is an ANC below 1800 (some sources use a lower value).
- Absolute neutrophil count (ANC) of 1000-1800:
Most patients will be given chemotherapy in this range.
Risk of infection is considered low.
- Mild neutropenia - Absolute neutrophil count (ANC) of 500-1000:
Carries with it a moderate risk of infection.
- Absolute neutrophil count (ANC) of less than 500:
Severe neutropenia - high risk of infection.
Tuesday, January 19, 2010
Friday, January 15, 2010
Hoping for no Fever...
Mimi has been really "off" today. Just tired and Ninety-nine-ing it, her temp has been in the high 99s. We will just lay low, color and watch movies and hope it passes.
Tuesday, January 12, 2010
Clinic Day.
Counts are good, although I forgot to grab the paper so I don't know what they were exactly. Mimi got her scheduled chemo and got checked out by a bunch of visiting medical students, she didn't mind. She does not have a fever but has been in the 99 area, her cough is still here and it seemed to get worse in the last two days but her lungs still sound clear.
On the three minute drive home she always looks so sad but the second she sees two familiar vans in our driveway and hears six little girls she is all smiles and goes to play and be loud like nothing ever happened. I love that it makes my heart happy.
Today's Chemo
Doxorubicin
Vincristine
On the three minute drive home she always looks so sad but the second she sees two familiar vans in our driveway and hears six little girls she is all smiles and goes to play and be loud like nothing ever happened. I love that it makes my heart happy.
Today's Chemo
Doxorubicin
Vincristine
Friday, January 8, 2010
My kid is a Rock and a Star :)
Her tiny legs got two gigantic shots, one in each leg, at the same time.
PEG-L-asparaginase is the chemo she received.
She cried when she saw the needle and a minute or two after but bounced right back and asked to go in the "playroom" and get a massage. We hung out a bit to make sure there was no reaction. The clinic had given us tickets to go to a hockey game tonight, she was super psyched to go but got really tired around dinner time and asked if we could just stay home.
So Movie, Popcorn and Strawberry Milk on the couch it was!
PEG-L-asparaginase is the chemo she received.
She cried when she saw the needle and a minute or two after but bounced right back and asked to go in the "playroom" and get a massage. We hung out a bit to make sure there was no reaction. The clinic had given us tickets to go to a hockey game tonight, she was super psyched to go but got really tired around dinner time and asked if we could just stay home.
So Movie, Popcorn and Strawberry Milk on the couch it was!
Wednesday, January 6, 2010
Not so fun morning...
Poor Mimi. I think we have all been spoiled by the normal phase last month. That ended, we will be looking to find another new normal during the next 8 weeks.
This morning I heard Mimi's little feet running to me trying to find a bucket, and again after her self made yellow scrambled EGGIEZ breakfast. She asked for a bath and was a little better for the rest of the day, but definetly very emotional. The steroids are kicking in.
This morning I heard Mimi's little feet running to me trying to find a bucket, and again after her self made yellow scrambled EGGIEZ breakfast. She asked for a bath and was a little better for the rest of the day, but definetly very emotional. The steroids are kicking in.
Tuesday, January 5, 2010
Long Day at the Clinic.
Not Bad. Just LONG.Today was Day 1 of 57 of Standard Delayed Intensification
First off I forgot to put on the Emla (numbing cream) I let Mimi sleep in so she would not have to be awake and hungry for too long. No worries that got taken care of when we got there. Next were counts, they were good. But since Mimi still has a cough and the Onc. thought he heard a "crackle" she was sent for a chest X-ray which came back quickly and negative Yey! So off to the procedure room we went (with a visitor - Kate :) Mimi perked up a bit for that) She was a bit nervous before the anaesthesia but went to sleep calmly. She got Inrathecal Methotrexate. I was nothing BUT calm, I hate sitting waiting in the waiting room, I watch the door and anxiously await the nurses to come get me when she is in the recovery room. She woke up pretty quickly today abut was very out of it for a while since she got Morphine today during her procedure, which is now making her funny, literally funny she is sitting next to me while I write this and is making up jokes that I need to type so Nana can read them :) After the Spinal, we went back upstairs to the clinic for the rest of the chemo (Doxorubicin). She is pretty tired now. We will just hang out watching movies tonight. Tonight we also start Dexamethasone (steroid) for 7 days.
A Joke from Mimi:
Knock Knock.
Who is there?
There is an orange on your head.
There is a plant growing on your head.
And that is it.
Thanks Meg and Eryn for a fun Sleep Over!!! G-Force! love, MIMI IZA
Today's Counts
WBC - 5.5
Hgb - 13.3
Platelets - 246
Neutrophil - 2300
First off I forgot to put on the Emla (numbing cream) I let Mimi sleep in so she would not have to be awake and hungry for too long. No worries that got taken care of when we got there. Next were counts, they were good. But since Mimi still has a cough and the Onc. thought he heard a "crackle" she was sent for a chest X-ray which came back quickly and negative Yey! So off to the procedure room we went (with a visitor - Kate :) Mimi perked up a bit for that) She was a bit nervous before the anaesthesia but went to sleep calmly. She got Inrathecal Methotrexate. I was nothing BUT calm, I hate sitting waiting in the waiting room, I watch the door and anxiously await the nurses to come get me when she is in the recovery room. She woke up pretty quickly today abut was very out of it for a while since she got Morphine today during her procedure, which is now making her funny, literally funny she is sitting next to me while I write this and is making up jokes that I need to type so Nana can read them :) After the Spinal, we went back upstairs to the clinic for the rest of the chemo (Doxorubicin). She is pretty tired now. We will just hang out watching movies tonight. Tonight we also start Dexamethasone (steroid) for 7 days.
A Joke from Mimi:
Knock Knock.
Who is there?
There is an orange on your head.
There is a plant growing on your head.
And that is it.
Thanks Meg and Eryn for a fun Sleep Over!!! G-Force! love, MIMI IZA
Today's Counts
WBC - 5.5
Hgb - 13.3
Platelets - 246
Neutrophil - 2300
Saturday, January 2, 2010
Happy 2010!
This was the first year that Iza and Mimi got to stay up and "party" as well as watch the ball drop in NYC (on TV) we had a great time at home with Friends and Family. Magi partied until about 11 :)
Mimi did not have any chemo on the 31st... We went in but only to be sent home sine we somehow had the wrong date OOPS! So Mimi got to spend New Years without feeling yucky. We go back on the 5th first thing in the morning for a spinal tap with chemo.
Mimi did not have any chemo on the 31st... We went in but only to be sent home sine we somehow had the wrong date OOPS! So Mimi got to spend New Years without feeling yucky. We go back on the 5th first thing in the morning for a spinal tap with chemo.
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