Out of 3 daughters Mimi is our middle child, older sister Iza by 3 minutes and a younger sister Magi by 3 years. Mimi was diagnosed with Acute Lymphoblastic Leukemia (ALL) on August 12, 2009. After 2 years, 2 months and 26 days on November 6th, 2011 she took her last chemo pill and is considered OFF Treatment! This is our story of our journey through childhood cancer.

Tuesday, November 24, 2009

It's Tuesday and we are HOME.

This morning Miss Mimi pulled her needle out at some point between 5 and 6am, the nurse came in to give her her antibiotic (IV through her port) when she checked her port site she did not see the needle. She woke me up and asked if someone came in to de-access her, I did not hear anyone and Mimi was sleeping soundly right next to me. We looked all around and found the needle near her sleeve! She somehow pulled it out in her sleep. So 6:30 am we had to wake Sleeping Beauty up to re-access her, she was not overly thrilled about being woken up (but fine with getting a 3/4 inch needle LOL) thank goodness for the prize bucket!

Mimi looked good and her cutures were all still negative so we got the okay to go home before lunch, of course it takes a while to discharge so we did not leave until a bit after noon.

We left with a script for Benadryl due to the allergic reaction Mimi got to the tegaderm adhesive. Her chest looks awful, red and blistery, she is also complaining of it being itchy. The nurses did find tape today that will (hopefully) work for her and gave me an extra on incase we go somewhere and there is none avaiable.

Her counts looked good on Sunday but dropped significantly today, her Onc. gave her the okay to go home today since she is due at the clinic on Friday anyway. I am hoping for a UNeventful and ThankFUL Thanksgiving at HOME.

Counts - 11/22 - 11/24
WBC - 6.1 - 4.1
Hgb - 11.2 - 12.1
Platelets - 192 - 158
Neutrophil - 3500 - 1300

Night-Night with Sparkles at the hospital.


Drinking her tea and watching TV, I love the new yellow walls in the children's hospital rooms.
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1 comment:

  1. Deborah BassNovember 25, 2009 at 8:32 AM

    Glad to hear all is back to the "new normal". Something really to be thankful for. Agreed about an Uneventful Thanksgiving. I think that is a common prayer. What a cutie--I'm so impressed with her ability to drink warm beverages. My girls haven't hit that stage yet.

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