Out of 3 daughters Mimi is our middle child, older sister Iza by 3 minutes and a younger sister Magi by 3 years. Mimi was diagnosed with Acute Lymphoblastic Leukemia (ALL) on August 12, 2009. After 2 years, 2 months and 26 days on November 6th, 2011 she took her last chemo pill and is considered OFF Treatment! This is our story of our journey through childhood cancer.

Sunday, January 31, 2010

Home!

Back to our beds tonight. Not that I minded snuggling with Mimster on the hospital bed but getting uninterrupted sleep tonight is much needed.

Oh and we did make the Italian Wedding Soup. Sooooo Good! I am going to post the recipe for the soup because it was so YUM! We also made brownies with walnuts but those just came out of a Ghiredelli box.

Magi is doing MUCH better she just needed her mama and some antibiotics.

Inpatient Day #5

9:15am

HOPEFULLY LAST DAY/MORNING.

Counts did not change too much but Mimi looks great, she is acting "bouncy" and she is due at the clinic on Tuesday. Discharge papers are being donr right now and we are being sent home with the knowledge that if ANYTHING looks odd to call ASAP.

Saturday, January 30, 2010

Inpatient Day #4

And guess what is up?
Counts!

Dr. R. came in bright and early this morning to let us know the good news. We can go home today. We will probably take our time doing that since it is 2 degrees outside, yes TWO.

As of right now she will get her scheduled daily chemo next week (Tuesday through Friday.)

At home MagiBoo seems to be doing better, no fever, no stuffies and her mood has improved.

Okay, off to eat some hospital breakfast! Mmmm...

2:45pm
Scratch that, all the above...
We are still here waiting. She is finishing up some of the IV antibiotics.
I have also ran out and brought MagiBoo to the Dr. since her fever came back and she was not looking so great. She has a slight ear infection, new to me none of the girls ever had one. So her and Mimi will be on the same antibiotics while home.

3:55pm
We are staying another night. The ANC is still 100. I guess all the other counts are slowly going up but the ANC (absolute neutrophil count) is still the same. If we go home we might just end up right back here with a fever, so will just stay the night and cross our fingers for a better number than a 100. Mimi is not overly upset about staying here as long as she can make THE soup with me tomorrow. We found a really yummy recipe.

Friday, January 29, 2010

INpatient Day #3

Still here...


No fevers since yesterday afternoon. Leg pain has been back on and off, still being treated with Tylenol. She is on two antibiotics Vancomicin and one that starts with a C. New is mouth sores, no fun, that is being treated also. The mouth sores are chemo and/or count related, her WBC is still low.


Counts this morning were
WBC 2.1
Hgb 11.7
Platelets 68
Neutrophil 100


So right now we don't go home until fever stays away and counts go up. Mimi is doing okay being here but I can tell she is starting to get home sick since she is thinking of things to cook when we get home. Italian Wedding Soup is #1 on her list we have looked up some recipes a little while ago. I can't wait to have all the monkeys together...



Here is a pic of Mimi's tattoos on her head, cutest head ever!


10:30pm

It might be a late night. Miss Mimi took a 4 hour nap, woke up around 8pm.

Vancomicin has been added to Mimi's IV Pole that is starting to look like a Christmas tree. She also started Tamiflu (just in case this is a flu-ish thing.) She got her mouth sore swabbed and her nostril swabbed also, as always she was a super star. Poor Magi Boo has a fever at home hopefully hers will go down. We are hoping for no fevers anywhere tonight!

Thursday, January 28, 2010

Inpatient Day #2

10am
Quick update. Mimi said I have only 5 minutes ;) to be back in the room.

Her fever came back yesterday late afternoon. The sinus x-ray showed there is a possible sinusitis. The leg pain has also come back yesterday and during the night not as bad as when we came in but enough that she asked for medicine. Hopefully today there will be a plan on how to figure out that pain, possible imaging.

We are coloring up the storm with scented markers and stuffing some envelopes Mimi wants to send out mail.

Iza and Magi are spending the day with their buddies Hannah and Norah and were all smiles when I dropped them off there this morning.

7:30PM
Okay so again quick update. Leg x-ray was fine, no fracture, nothing odd on it. There was a blood test done (a three letter one ERS maybe?) anyway that was okay as well. So right now she is on two different antibiotics and Tylenol as needed when she complains of leg pain. She also got another chest x-ray to make sure nothing started there since we checked last. She loves seeing the x-rays and people are prety nice around here to show them to her.

Iza and Magi are having a sleepover at Ela and Lily's which is keeping them entertained and Iza's mind off of Mimi being in the hospital, she was a little bummed that she can't see her but they have been calling each other through out the day it is quite funny to hear their little conversations.

Wednesday, January 27, 2010

Inpatient...

Mimi was admitted to the hospital in the middle of the night after she woke up screaming in pain. We got to the hospital 15 minutes after she woke up in pain, the pain still remains a mystery, it was lower back pain and lower left pain. She also spiked a fever of 101.8.

She got blood draws, chest x-ray and urine sample taken.

After some pain meds she got some sleep and is fine this morning.

Besides the Hgb they are all pretty low.

WBC - 2.7
Hgb - 13.7
Platelets - 97
Neutrophil - 200

I will keep updating as I know more. The Hair Fairy DID come and Toto (aka Uncle Victor) brought the bag of goodies she has left behind.

2pm
I just swapped with Dan he is with Mimi while I am here to shower and play with the girls for a bit before I go back.

Mimi's chest x-ray came back and it is negative for pneumonia and bronchitis. She has been fever free since she got the Tylenol at around 1am this morning. She is not complaining of any pain and the pain in her back and leg has not been back, still a mystery... Next up is x-ray of her sinuses to check for any infection there (sinusitis.) Other than just being tired she is acting okay, watching Wizard of Oz AND sporting a Hungry Caterpillar Tattoo on her head! Of course there will be a picture coming, she has already asked me to bring the camera to the hospital.

Thank you everyone for the email and phone hugs :)

Tuesday, January 26, 2010

The Hair Fairy will be visiting tonight!

Mimi woke up from her morning nap just before 10:45am and asked if I can do her hair. I have been putting it up in a pony tail so it is not all over the place. As I was taking it out most of the hair fell out. I think I panicked a little not knowing what to say...


"You know how you loose your teeth and the tooth fairy comes... Well when you loose your hair the Hair fairy comes!"


"Nooo Way! Get it all off so I can put it in a bag and put it in under my pillow!"

So we brushed and brushed with the help of Iza and Magi and put it in a baggie and the hair is waiting for the hair fairy. The hair that is still there we styled it and she got a cute bob for today but when daddy comes home he will finish cutting all the hair off. Daddy also said he will cut all his hair off but Mimi said she wants the Hair Fairy to come only to her. LOL Mimi wants to hair for bed tonight.

I have been worried about this not really knowing how she will take it or how the girls will react but they blew me away. There were no tears, no one was sad, just a bathroom filled with girls, smiles and laughter. So there Cancer Take that!

I have the BEST kids ever!