This Friday went much smoother even with a major delay due to a malfunction of some oxygen machines... something you always want to hear that the oxygen "machine" is not working properly. We got to clinic for 10am but Mimi did not go into the procedure room for her Spinal Tap until around 1pm! She did awesome though she got lots of art done, played some video games and had some visitors even Sarah who talks with her hands and talks to Aladdin! ;)
She will be going for Spinal Taps every Friday for the next 3 weeks and started a new pill daily. I will update with the exact study she is on when I get back to the computer. MagiBoo just got into soap...
Title of the project/research study AALL0331
Standard Risk B-prosecutor ALL
Part II - Post Induction Intensification
She was chosen randomized into the standard treatment arm (SS-IV) which will last 4 weeks.
Drugs:
Mercaptopurine (daily pill for 28 days)
Vincristine (IV push one time on day 1)
Methotrexate (intrathecal administration, spinal tap days 1, 8 and 15)
She is also getting her antibiotic three times a week two times a day.
Sorry your little girl has ALL too, but its always nice to know another going through it so you don't feel so alone. Ezra is on the same protocol, he didn't get randomized because we chose not to do the study, but all his meds are the same except a few less PEG shots and BMA's. I look forward to getting to know you, my name is Beth by the way.
ReplyDeleteHi Beth! It is nice not be be all alone in this...
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